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Posts Tagged ‘downs syndrome’

what to expect when you’re expecting

Monday, November 29th, 2010

to mark the season of advent and the accompanying waiting and yearning for new life in all of its various forms, i’m posting a sermon i preached this time last year at shady grove church. it’s the most honest and vulnerable sermon i’ve ever preached, and i’m including it in the MakeShift revolution because it is equally influenced by my ministry and my motherhood. the texts of the day were jeremiah 33:14-16 and luke 21:25-36. interspersed throughout the text are some block prints i did in 2007 for the advent bulletin covers atidlewild church.

*     *     *

The “baby watch” had begun. The future grandparents called every 12 hours or so to ask about signs of labor. The great-aunt was on standby, ready to babysit the two-year-old on a moment’s notice. The nursery had been complete for a good month, the baby clothes had been washed, folded, and put away, the name had been selected, and the birthing plan had been mapped out. The new car seat was secure in the car. The two-year-old endured periodic explanations about what was about to happen, even though he really just wanted to play with his play dough in peace. And everywhere she went, that is, everywhere I went, I was a walking, waddling, symbol of Advent, pregnant, like Mary, during the days leading up to last Christmas. 

 

Meanwhile, the season of Advent set the stage with its rich stories. The prophets were prophesying the coming of a new king. John the Baptist was urging his congregation, the brood of vipers, to repent. Mary and Joseph saddled up a pack animal and went to be registered. The young adult Jesus was telling his disciples, and us, to look for the signs of the second coming. The weeks unfurled to the sights of Christmas lights, and the sounds of TV ads meant to herald, or perhaps beg for, salvation for our broken economy. There were the usual to-do lists and the painfully unusual absences left by death and empty nests. I don’t need to tell you what the holidays are like. We all know that strange hybrid of hope and impatience, excitement and desperation that comes when we are expecting God to break into our midst. But for me, last year, it really did all come down to the baby. My baby, who threatened all winter to make an early arrival and beat the baby Jesus to the punch.

I spent some time last year thinking that being very pregnant during Advent gave me a special entry point into this season of preparation and waiting. This brought an added measure of importance to the usual third-trimester symptoms: shortness of breath, night-waking, paranoia about missing the signs of imminent birth, mistaking my own impatience for signs of imminent birth, indigestion, emotional highs and lows, and attempts to conform this miracle to my schedule by eating spicy food, standing on my head, walking laps around the mall, etcetera.

 

But then I remembered that all of my Advents before had been marked by the same symptoms. Perhaps you suffer from some of these inflictions too: shortness of breath, night-waking, paranoia about missing the signs of imminent birth, mistaking your own impatience for signs of imminent birth, indigestion, emotional highs and lows, and attempts to conform this miracle to your schedule. After all, Advent’s vulnerable waiting wrapped up in the frenzy of pomp and circumstance transforms us all, every year, into people who are expecting, whether we’ve ever been pregnant or not.

But it was not just my pregnancy that connected me so intimately to the Advent story last year. It was another common thread that weaves through the prophecies and the gospels, through my story, and perhaps yours too. I was lured into believing that I knew what to expect when I was expecting.

The people of the houses of Israel and Judah are certain that the coming king will be a ruler, like the rulers of their day. Jeremiah TELLS them that the coming king will establish justice and righteousness in the land, and they just assume that this justice and righteousness will happen in the usual way – by killing off their enemies. They are lured into believing that they know what to expect when they are expecting.

The people who crowd around Jesus in the gospel of Luke, and later many Christians of our time are certain that the second coming of our king will be signaled by the sun, moon, and stars; distress among the nations; and the roaring of the sea and the waves. Jesus TELLS them and us that the Son of Man is coming on a cloud, and from then on our generation of followers has just assumed that this event can be quantified, predicted, screen lit, packaged, and sold. We, that is many Christians of our day and time, are lured into believing that we know what to expect when we are expecting.

The ultrasound tech told my husband and me that our baby was to be a boy. And because we already had one of those — a precious, curly-headed, spirited wonder –  we just assumed that the baby growing in my womb would be another precious, curly-headed, spirited wonder. We were lured into believing that we knew what to expect when we were expecting.

But the people of the houses of Israel and Judah did not get what they were expecting. Their king was a baby, and though he eventually did work for justice and righteousness, he didn’t follow the military model. Instead, he preached about forgiveness and nonviolence

The people who crowd around Jesus in Luke and even now don’t always get what we are expecting either. There are glimmers of the second coming all the time but the cataclysmic event that hits it big in the box office does not seem imminent, nor does longing for it heal the longing in our souls

And a test in the sixteenth week of my pregnancy revealed that my expectations were not accurate either. My little boy had an elevated risk for downs syndrome. Downs or no downs, he could still be a precious, curly-headed, spirited wonder, but I could no longer cling to the silly notion that my second son would be just like my first.

Twice, I endured procedures designed to tell me for sure whether or not my son had Downs. Twice these procedures failed. I was left with no choice but to move through the season in a sort of embodied uncertainty. I had no idea what to expect while I was expecting, and I realized then that nobody else REALLY does either.

 

Well, this was an entirely different kind of waiting than I had signed up for. The place in my heart that I was preparing for another precious, curly-headed, spirited wonder slowly died, and in its place grew a reluctant, and eventually exuberant openness to this baby, who would change my life forever. Advent comes each year with its traditions and stories, associations, and plans. We have learned to prepare our hearts for these things, so comforting with their certainty. But only the uncertainty, only the wild prospect of an unpredictable savior, only this different kind of reluctant and eventually exuberant waiting can really open us up to the fullness of new life that is promised. Sometimes our expectations keep us from the radically receptive kind of expecting to which we are called.

My son, [the bird], was born on January 17th of this year, and he does not have Downs Syndrome. But in my opinion, the real victory in this story lies elsewhere. From the moment the doctor handed me my baby, fresh from the womb, I felt nothing but unconditional love. The question about Downs that had ruled so much of my pregnancy had no relevance at all in the face of this love, so powerful, this baby, so divine. Miraculously, I had made room for him, and all that he is, and all that he will become.

 

This is how my little [bird] taught me what Advent is all about before he was even 5 minutes old. It’s about opening our hearts to a God who is never limited by our expectations. It’s about embracing uncertainty. It’s about casting aside all of those things that have no relevance at all in the face of love and divinity. But most of all, it’s about making room for the baby, born in the city of David, and all that he is, and all that he will become.

AMEN.

Tags:advent, block prints, downs syndrome, expecting, idlewild church, ministry, motherhood, new life, preaching, sermon, shady grove church, what to expect when you're expecting
Posted in awe, embodiment, metaphors, ministry, seasons | 4 Comments »

technology

Thursday, April 22nd, 2010

these days, motherhood and technology are so intertwined that those who came before us cannot help but marvel at the advances that now equip us for the hardest job we’ll ever love. if you don’t believe me, try counting the number of times this phrase is uttered at the next baby shower you attend:

“i wish those [fill in the blank with the latest baby care contraptions] were around when i was a young mom. we used to have to [fill in the blank with the most laborious and excruciating description of tedium you can imagine] when our children were little.” 

surely you’ve memorized this conversation by now.

but when these comments filled the air at my baby showers, they were especially true. not only would my husband and i benefit from the technology behind the bouncy seat, baby monitors, and breast pump. i got pregnant by the most cutting-edge and constantly upgraded fertility technology offered by modern science: in vetro fertilization. to say that i am thankful for technology would be an understatement.

but this gratitude was tempered during my second pregnancy, wherein i was introduced to the underbelly (pun intended) of technology. my triple screen test showed an increased risk that the bird would have downs syndrome. i saw a specialist, who played around with numbers on a notepad and used gambling metaphors to explain to me the odds that the bird would have downs. my husband and i struggled with whether or not to have an amniocentesis, which would put the baby at slight risk but give us the information we thought we needed in order to gracefully welcome our little one. with uncertainty, we consented to the procedure. twice. and both times, the amnios failed. this was not among the carefully analyzed scenarios for which we were prepared. neither was the ultrasound tech’s false diagnosis of amnio-induced uterine damage, a condition which would likely end the pregnancy. i spent two miserable days in bed, under the covers of guilt and fear, waiting for various doctors and specialists to confer with one another — to interpret the data offered by technology.

it wasn’t until my baby bird was born that we learned that he does not have downs. but while i was pregnant with him (thanks to technological failings, some difficult internal work, and a miracle from god)  i eventually arrived at a place where i did not care whether he had downs or not. the point is that the same bright force that positioned him carefully inside my uterus snatched me suddenly into the shadows of truths not yet revealed.

technology has taken me to the highest of highs and the lowest of lows. yet, it has become like the air i breathe: silent, necessary, and (barring miracle or catastrophy) unnoticed. but living harmoniously with such a powerful force takes a certain daily awareness of its role in my life. it is to this end that i write. i hope to notice and appreciate with reverence the powers that be.

[speaking of technology and the air we breathe, check out i love technology  by heather at theta mom. this account of technology’s role in a family affected by asthma inspired me to write the post above.]

Tags:amnio, amniocentesis, downs syndrome, i love technology, in vetro, pregnancy, technology, theta mom
Posted in awe | 4 Comments »

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